About Evan aka Ev
I was diagnosed with ALS in 2018 at the age of 37. At the time I had a 1 and 3 year old. Immediately prior to the diagnosis we were living in India, a Foreign Service family. Before that I was the director of an Autism center and loved digging into all life had to offer and being an actively involved mom. Now…well, now I don’t know quite what to make of myself. If you don’t know much about ALS google it and you will find that if truth is stranger than fiction then ALS is scarier than Texas Chainsaw Massacre. This blog is to raise awareness and more because I can’t think of anything more boring than only reading about one disease. No doubt about it, we are in a crappy, awful situation, but we are committed to making this life beautiful anyways.
Love always,
Ev