Post 11: New Year, New Hope

Article in Axios

New Year, New Hope

This is a bit of a “cheat” post, but in the interest of keeping people up to date I want to share some exciting news, in the form of a news link.

Under the leadership of I Am ALS, the Act for ALS was signed into law after 2 years of hard work primarily by patients, caregivers, and their friends and families. ACT for ALS will allocate $500 million to ALS research over 5 years and allow patients not eligible for clinical trials (like me as of recently) access to experimental treatments. This is the most hope patients have ever had.

You can read the whole story in Axios here.